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Abstract

第124巻第11号

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Self-stigma in the Context of Dementia
Koji KASANUKI1,2,3
1 Department of Neuropsychiatry, St. Marianna University School of Medicine
2 Department of Psychiatry, Juntendo Tokyo Koto Geriatric Medical Center
3 PET-CT Dementia Research Center, Juntendo Tokyo Koto Geriatric Medical Center
Psychiatria et Neurologia Japonica 124: 778-785, 2022

 Important movements related to reducing self-/public stigma in the context of dementia after the year 2000 are summarized in this overview: 1) In 2004, the Japanese government changed the previous term of dementia "Chiho" to the present term "Ninchi-sho". After sixteen years of this symbolic decision, a recent survey revealed that over 70 percent of the family members of people living with dementia considered that the present term ("Ninchi-sho") caused them less discomfort than the previous one ("Chiho"). Effective educational strategies for reducing stigma in the context of dementia have been developed alongside this change of terminology. 2) There has been little evidence regarding proper self-stigma outcome measures for people with living with dementia. According to the recent review, the only scale is the self-stigma scale, which was previously tested quantitatively in populations living with dementia. Stigma scales from mental health appear not to be readily adapted for use with people with dementia. 3) Protest/social activism for people with dementia has progressed in these two decades. During the 2010s, personal activism of people with dementia had been organized gradually, and the Japan Dementia Working Group (JDWG) was founded in 2014 by people with living with dementia. In recent years, JDWG members' opinions are reflected in government policies related to dementia. In this context, I briefly mention the concept of "dementia-friendly community". Although there has been progress, even today, self-/public stigma in the context of dementia remains to some extent in our society; therefore, accepting a diagnosis of dementia is still something that patients need courage to do. Our goal regarding reducing stigma in the context of dementia has not been completely achieved. The modern paradigm of "living together with dementia" continues to be our key concept.
 Author's abstract

Keywords:dementia, self-stigma, dementia friendly community>
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